About Us

How cruel that a rare, genetic disease that kills most of its victims before the age of two would fall into the category of "orphan" disease. But the name is appropriate. Wiskott-Aldrich Sydrome strikes too few children to garner national attention, celebrity telethons or massive government research. In fact, before 2003, Wiskott-Aldrich had no organized charitable support at all.

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Creating and growing the The Wiskott-Aldrich Foundation began as a personal crusade by the friends and family of P.J. Lyle. None of them had heard of the disease until it threatened to take the life of the young son of Peter and Beth Lyle. The Lyle's story is both inspiring and heartbreaking. Media coverage of their story brought a torrent of contributions to the foundation, but also caught the attention of WAS families who thought no one was out there to help.

The foundation now receives a steady stream of requests for support, both financial and emotional. Our mission is to fulfill every request to the best of our ability, but that requires your support. Please give generously to The Wiskott-Aldrich Foundation. Your tax-deductible contribution could ease the stress put on hundreds of families just like yours

Featured Family

Mason Bauman

Disease: Wiskott-Aldrich Syndrome
Status: recovering from bone marrow transplant